NUS CRiHSP

HEXl-SG

Health Experiences Singapore (HEXI-SG) - Colorectal Cancer (in collaboration with the NUHS Department of Family Medicine)

Colorectal cancer is Singapore’s second most common incident cancer and the second most common cancer-causing death. It is also the leading cancer that affects Singaporean women and men in roughly equal numbers. Yet there is limited research on patients’ experiences of colorectal cancer in Singapore. This study aims to fill this gap through establishing an in-depth understanding of Singaporeans’ experiences of the journey of having colorectal cancer.

This project is part of the Health Experiences Singapore (HEXI-SG) initiative, a collaboration between CRiHSP and the NUHS/NUS Department/Division of Family Medicine for the creation and curation of repository of patient experiences for self-care and patient and public empowerment, research, training of health professionals, and quality improvement.

We will employ the Health Experiences Insights (HEXI) methodology, an internationally renowned, state-of-the-art qualitative research and dissemination method. This is the first time this research methodology is being used in Singapore. Key components of the HEXI methodology applied to colorectal cancer include:

  1. Video- or audio-recorded narrative interviews with at least 30 people from a wide range of backgrounds and having had a colorectal cancer diagnosis at least 12 months ago;
  2. Producing a publicly accessible website highlighting the diversity of experiences across patients’ journeys with colorectal cancer and illustrated with ~250 video, audio, and written interview excerpts.


Our Singapore website will join the
14 other HEXI International country-specific websites, sharing patient journeys from around the world for more than 180 health conditions, including colorectal cancer.

Findings from this study will help improve colorectal cancer patient care and their quality of life and may contribute to improved survival rates. We expect the HEXI-SG website will reach and inform patients, caregivers, health care providers, health care students and policy makers.

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Development of the WHO Patient Reported Experience Measures (PREMs) for Primary Care

Funder:                       World Health Organisation, National University of Singapore
Duration:                     2024 – 2026
Lead Investigator:     Jose M Valderas
Contributors:             Marie Ng, Wee Ling Koh

This study aims to develop and assess the metric properties of a suite of tools for measuring patient experiences of care in primary care settings.

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National burden of 12 mental disorders in member countries of the Association of Southeast Asian Nations (ASEAN): A systematic analysis of the Global Burden of disease (GBD) Study 2021

Funder:                       National University of Singapore
Duration:                     2024 – 2025
Lead Investigator:     Marie Ng
Contributors:             Jose M Valderas, Wee Ling Koh

This study aims to compare GBD indicators for mental illness in the 10 countries included in ASEAN to highlight regional and national trends as well as identify populations with particular needs. Findings from the study will be useful for policy makers, researchers, and clinicians.

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Database of Individual Patients' Experiences (DIPEx) - Colorectal Cancer (in collaboration with the NUHS Department of Family Medicine)

Funder:                       Singapore Primary Care Cancer Network (SPriNT)
Duration:                     2024
Lead Investigator:     Laurie Goldsmith
Contributors:             Jose M Valderas, Merial Maniclang

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Developing a system for the use of natural language for the robust measurement of health-related quality of life, self-reported health and related patient reported outcome measures

Funder:                       National University of Singapore
Duration:                     2024 -2026
Lead Investigator:     Jose M Valderas
Contributors:             Ellie Choi, Arivazhagan Karunakaran

This study aims to combine national language processing and IRT models to support data collection of patient reported information using free text.

Value Based Healthcare

International Comparison of
Health Systems Performance

Integrated Coordinated Care