Publications arising from the SHAPES working group on Ethics of Big Data in Health

An Ethics Framework for Big Data in Health and Research
Published in: Asian Bioethics Review, Volume 11, Issue 3, September 2019 (open access)

Editorial
Laurie, Graeme, and E Shyong Tai. 2019. Delivering a Practical Framework for Ethical Decision-Making Involving Big Data in Health and Research. Asian Bioethics Review 11 (3).

Lead Article
Xafis, Vicki, G. Owen Schaefer, Markus Labude, Iain Brassington, Angela Ballantyne, Hannah Yeefen Lim, Wendy Lipworth et al. 2019. An Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Applications of the Framework
Xafis, Vicki, and Markus Labude. 2019. Openness in Big Data and Data Repositories: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Schaefer, G. Owen, E Shyong Tai, and Shirley Hsiao-Li Sun. 2019. Precision Medicine: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Lipworth, Wendy. 2019. Real-World Data to Generate Evidence about Healthcare Interventions: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Lysaght, Tamra, Hannah Yeefen Lim, Vicki Xafis, and Kee Yuan Ngiam. 2019. AI-assisted Decision Making in Healthcare: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Ballantyne, Angela, and Cameron Stewart. 2019. Public Private Partnerships in Big Data: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Laurie, Graeme. 2019. Cross-Sectoral Big Data: Application of an Ethics Framework for Big Data in Health and Research. Asian Bioethics Review 11 (3).

Other recent publications on big data ethics by members of the Working Group

2020

Ballantyne, Angela. 2020. How should we think about clinical data ownership? Journal of Medical Ethics: medethics-2018-105340. doi:10.1136/medethics-2018-105340.

2018

Schaefer, G. Owen, Markus Labude, and Harisan Unais Nasir. 2018. Big Data: Ethical Considerations. In Handbook of Philosophy and Public Policy, ed. David Boonin. Cham, Switzerland: Palgrave McMillan.

Ballantyne, Angela. 2018. Where is the human in the data? A guide to ethical data use. GigaScience 7 (7):giy076. doi:10.1093/gigascience/giy076.