{"id":18719,"date":"2024-05-08T14:56:12","date_gmt":"2024-05-08T06:56:12","guid":{"rendered":"https:\/\/medicine.nus.edu.sg\/cbme\/?page_id=18719"},"modified":"2024-07-31T10:47:53","modified_gmt":"2024-07-31T02:47:53","slug":"health-data-governance","status":"publish","type":"page","link":"https:\/\/medicine.nus.edu.sg\/cbme\/research\/health-data-governance\/","title":{"rendered":"Health Data Governance"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"18719\" class=\"elementor elementor-18719\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7db34014 elementor-section-height-min-height elementor-section-content-middle elementor-section-stretched nus-page-banner elementor-reverse-mobile elementor-section-boxed elementor-section-height-default elementor-section-items-middle\" data-id=\"7db34014\" data-element_type=\"section\" data-settings=\"{&quot;stretch_section&quot;:&quot;section-stretched&quot;,&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-1310a9a8\" data-id=\"1310a9a8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-483847ab elementor-widget elementor-widget-heading\" data-id=\"483847ab\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Project Title: <br \/>Health Data Governance<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5eb1eca6 nus-row-breadcrumb elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5eb1eca6\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-15157eb\" data-id=\"15157eb\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7d7307de elementor-widget elementor-widget-shortcode\" data-id=\"7d7307de\" data-element_type=\"widget\" data-widget_type=\"shortcode.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-shortcode\">\t<div class=\"breadcrumb-ss-container\">\n\t\t<div class=\"breackrum\">\n\t\t\t<div class=\"container\">\n\t\t\t\t<ul><li class=\"home\"><a class=\"bread-link bread-home\" href=\"https:\/\/medicine.nus.edu.sg\/cbme\" title=\"Home\"><span class=\"bread-icon\"><\/span><span class=\"bread-text\">Home<\/span><\/a><\/li><\/ul>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1d5ae4a6 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1d5ae4a6\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7c034e43 research-detail-overview\" data-id=\"7c034e43\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-468fb51b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"468fb51b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-599e902c\" data-id=\"599e902c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-421cb94 elementor-widget elementor-widget-heading\" data-id=\"421cb94\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\"><b>Grant Period:<\/b><BR \/> \n01 Mar 2020 \u2013 28 Feb 2025 (Extended to Feb 2026)<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-7db951f1\" data-id=\"7db951f1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-26d2129a elementor-widget elementor-widget-heading\" data-id=\"26d2129a\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\"><b>Quantum:<\/b> <br \/>S$847,250<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-a3bb643 elementor-widget elementor-widget-heading\" data-id=\"a3bb643\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\"><b>Funding Source:<\/b><br \/>National Research Foundation and Singapore-ETH Centre (SEC)<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-77d0566 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"77d0566\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6e96bde elementor-widget elementor-widget-heading\" data-id=\"6e96bde\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\"><b>Principal Investigator:<\/b><br>Tamra Lysaght \/ Owen Schaefer<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6a4b914d elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6a4b914d\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-8ec268f\" data-id=\"8ec268f\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-23b0bbda elementor-widget elementor-widget-heading\" data-id=\"23b0bbda\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Project Summary<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7a1892d8 elementor-widget elementor-widget-text-editor\" data-id=\"7a1892d8\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>This project is part of the Future Health Technologies (FHT) research programme within the Singapore-ETH Centre (SEC) (For more information on SEC, please go to: <a href=\"https:\/\/sec.ethz.ch\/\">https:\/\/sec.ethz.ch\/<\/a>). This project (Module 4 of FHT) serves two primary purposes: (1) to develop and implement trustworthy data governance practices for FHT researchers engaged in Modules 1 through 3 and (2) to contribute high-quality scholarly work to the fields of bioethics and health law. To accomplish these objectives, Module 4 has initiated three value-creation projects focused on health data governance. These projects contribute to the development of a robust, trustworthy governance guidance, informed by ethical and legal considerations, that are of practical value to researchers working in health research and address critical gaps in knowledge of health data governance. The guidance will be particularly useful in helping stakeholders manage the intricacies of international data transfer while adhering to both legal requirements and ethical standards.<\/p>\n<p><strong>This proposal contains three projects:<\/strong><\/p>\n<p><strong> <\/strong><\/p>\n<p><strong><\/strong><\/p>\n<table border=\"1\" cellspacing=\"0\" cellpadding=\"0\" style=\"width: 95.2856%;\">\n<tbody>\n<tr>\n<td width=\"80\" valign=\"top\" style=\"width: 17.119%;\">\n<p><span lang=\"EN-AU\">Project<\/span><\/p>\n<\/td>\n<td width=\"392\" valign=\"top\" style=\"width: 101.461%;\">\n<p><span lang=\"EN-AU\">Project themes<\/span><\/p>\n<\/td>\n<\/tr>\n<tr>\n<td width=\"80\" valign=\"top\" style=\"width: 17.119%;\">\n<p><span lang=\"EN-AU\">1<\/span><\/p>\n<\/td>\n<td width=\"392\" valign=\"top\" style=\"width: 101.461%;\">\n<p><span lang=\"EN-AU\">Stakeholder engagement for trustworthy data governance<\/span><\/p>\n<\/td>\n<\/tr>\n<tr>\n<td width=\"80\" valign=\"top\" style=\"width: 17.119%;\">\n<p><span lang=\"EN-AU\">2<\/span><\/p>\n<\/td>\n<td width=\"392\" valign=\"top\" style=\"width: 101.461%;\">\n<p>Ethical decision making for the use of Artificial Intelligence in health care and research <span lang=\"EN-AU\"><\/span><\/p>\n<\/td>\n<\/tr>\n<tr>\n<td width=\"80\" valign=\"top\" style=\"width: 17.119%;\">\n<p><span lang=\"EN-AU\">3<\/span><\/p>\n<\/td>\n<td width=\"392\" valign=\"top\" style=\"width: 101.461%;\">\n<p>Wearable sensing technologies for health and research<\/p>\n<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p><strong>\u00a0<\/strong><\/p>\n<ul>\n<li><span style=\"font-family: var( --e-global-typography-text-font-family ), Sans-serif;\">Project 1 aims to develop trustworthy data governance framework through engagement activities with relevant stakeholders in Singapore to better reflect values that are important to them.<\/span><\/li>\n<li>Project 2 aims to collaboratively build evidence-based ethical decision-making support tools for the use of artificial intelligence (AI) in healthcare and research.<\/li>\n<li>Project 3 aims to explore the role of law in managing cross border data transfer in relation to wearable sensing technologies for health and research through conceptual legal analysis.<\/li>\n<\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-73ad218 elementor-widget elementor-widget-heading\" data-id=\"73ad218\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Project 1: Stakeholder engagement for trustworthy data governance<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8206416 elementor-widget elementor-widget-text-editor\" data-id=\"8206416\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>In 2022, the team conducted a modified Policy Delphi mixed-methods study to engage an expert panel of stakeholders in developing an ethical code that is both values-based and empirically informed on how researchers in Singapore should collect, use and transfer what constitutes potentially sensitive health data. The panel\u2019s deliberations occurred over three stages starting with semi-structured interviews to generate ideas and policy options, which were then prioritised with an online survey and refined at a stakeholder workshop. Five stakeholder groups participated in the Policy Delphi: data contributors and end-users; data generators; data resources; data facilitators; and professional data users.<\/p>\n<p>Please click on the following image to access the interactive diagrams.<\/p>\n<p><strong><\/strong><\/p>\n<p><\/p>\n<ul><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b546f0f elementor-widget elementor-widget-image\" data-id=\"b546f0f\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"\/\/digitalmethods.ch\/projects\/nus-cbe-ethics-code-for-health-data\/standalone\/nus-cbe-ethics-code-for-health-data.svg\" target=\"_blank\" data-elementor-open-lightbox=\"no\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"700\" height=\"500\" src=\"https:\/\/medicine.nus.edu.sg\/cbme\/wp-content\/uploads\/sites\/14\/2024\/07\/Untitled-design-2.png\" class=\"attachment-2048x2048 size-2048x2048 wp-image-22465\" alt=\"\" srcset=\"https:\/\/medicine.nus.edu.sg\/cbme\/wp-content\/uploads\/sites\/14\/2024\/07\/Untitled-design-2.png 700w, https:\/\/medicine.nus.edu.sg\/cbme\/wp-content\/uploads\/sites\/14\/2024\/07\/Untitled-design-2-300x214.png 300w\" sizes=\"(max-width: 700px) 100vw, 700px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4f6890c elementor-widget elementor-widget-heading\" data-id=\"4f6890c\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Related Publications<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-010420c elementor-widget elementor-widget-text-editor\" data-id=\"010420c\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>\u2022 Lysaght, T., Chan, H.Y., Scheibner, J. et al. An ethical code for collecting, using and transferring sensitive health data: outcomes of a modified Policy Delphi process in Singapore. BMC Med Ethics 24, 78 (2023). <a href=\"https:\/\/doi.org\/10.1186\/s12910-023-00952-7\">https:\/\/doi.org\/10.1186\/s12910-023-00952-7<\/a><\/p>\n<p>\u2022 Chan, H.Y., Toh, H.J. &amp; Lysaght, T. Cross-jurisdictional Data Transfer in Health Research: Stakeholder Perceptions on the Role of Law. ABR (2024). <a href=\"https:\/\/doi.org\/10.1007\/s41649-024-00283-8\">https:\/\/doi.org\/10.1007\/s41649-024-00283-8<\/a><\/p>\n<ul><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1b71b20 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1b71b20\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-357f584\" data-id=\"357f584\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Project Title: Health Data Governance Grant Period: 01 Mar 2020 \u2013 28 Feb 2025 (Extended to Feb 2026) Quantum: S$847,250&#8230;<\/p>\n","protected":false},"author":8998,"featured_media":0,"parent":17059,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"page-nobanner-title.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-18719","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.4 - 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